Monday, June 3, 2013

Summer Update

Well, to start off, I apologize to you for taking so long to write an update.  I have a dear prayer warrior that has asked twice if she had missed an update.  No, life has just been busy and there hasn't been a lot to say.

Joe is feeling well, his kidney function has been sitting fairly steady in the upper 20%.  Anything  above 20% delays his transplant.  He has still had to increase medication at each monthly blood draw until last month.  In May he was able to cut out 2 pills!  That is the first time he has had any decrease in at least a year, so you can see we were happy!

Joe and I spent today in OKC seeing his nephrologist and doing a study visit for kids with chronic kidney disease.  It was a long day, but we personally learn a lot about Joe's health and the field of nephology has learned so much and continues to study the all around effects kidney disease has on children.  As an added bonus, Joe gets paid for all the poking and prodding at least once a year!

Today's blood work showed a slight decrease in function, so we still do not know when we can do the transplant surgery.  Jeremy and Joe are all ready to go once we get the "go ahead" from the team.

Thank you for your continued prayers, Joe's anxiety is getting so much better.  I was reporting to the psychologist at OU just how well he is doing.  We praise God for His faithfulness.  Our prayers now focus on asking God for His perfect timing and that Joe will not have to get very sickly before he can have his new kidney.  Thank you for praying for all five of us.  We cherish each one of you!

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