Sunday, March 3, 2013

To Keep You Updated

We are in a waiting pattern right now.  Jeremy should received full clearance to be able to donate his kidney to Joey this week.  They asked for an EKG to be done locally before they said yes.  Our physician said everything looked fine on it, so we fully expect Kansas City to give their okay by Wednesday.

Joey is showing an improvement in his kidney function.  He is currently at 27% function.  At this level we cannot schedule surgery.  He must be at or below 20%.  At first, I really struggled with this, but I am learning to wait patiently on God's perfect timing.  I thought I had a "great" plan for how we could schedule this major "disruption" into our lives and be on our merry way.  Of course, God's plan are always better than our own, so we wait.

Joey is feeling okay right now.  He is dealing with more psychologically than the physical pains.  Medicines are still on-going.  We are hoping for our insurance company to approve a new therapist out-of-network.  We feel she can help Joey and us prepare for his transplant and life post surgery.

Joey was able to play in his first volleyball tournament this past weekend!  It was a lot of fun and a great learning experience, ie we didn't win a game.  :)  We were thrilled with Joey's energy level throughout the day.  So all in all it was a great day!

Please keep praying for us.  My concerns with waiting are just wondering what Joey will feel like by the time he is allowed the transplant and what I will need to do with our girls during our hospital stay.  Thank you for your words of encouragement and prayers.  Thanks for passing this blog along to your friends and trusted prayer warriors.  I know without a doubt the reason for my peace is I've received so many prayers on our behalf.  God bless!