Sorry for the boring title, it's been a long week. We returned from our evaluation in Kansas City. We left after 15 appointments in 3 days! So you can understand our fatigue!
As my boys like to start the story, day 1 I passed out getting my blood drawn. Which at Mercy hospital is a CODE BLUE! Yikes! No less than 20 people responded to me fainting! In my defense, it was a student drawing the blood and they needed 8 vials (she got 2 before I went to "La La" land). Anyway the next day, Joe was a champ, he had 9 vials drawn! Turns out Jeremy is a really good match. We found out today, step two in the process that their blood mixes together without fighting. (Now they have NO excuses!)
We learned a whole lot, more than I care to share on here, but I do ask that you pray for step 3. Step 3 is that Jeremy's DNA and Joey's DNA share at least 3 common strands. I am praying for five. Don't ask me the details, I know not. However, I do understand that the more strands he matches now, the easier it is to get the next transplant. This I can explain if you ever want to know.
Dr. Warady anticipates that surgery will be early summer. It takes months to get both Jeremy and Joey worked up for surgery. Jeremy will need to got to St. Luke's in KC soon for his full evaluation.
We were told to treat this like a treatment, not a cure. Joey has a rough road ahead. The next 18 months will not be easy. However, I know our God goes before us in all of this. Anti-rejection meds are "no walk in the park". We are happy to learn his very restrictive diet will be gone after he gets a new kidney. We were told that some things we hoped for with transplant likely may not happen, but forward we will go.
Thanks for your continued support. We would be lost without your prayers.
Hi there, Carrianne. I want to let you know that no matter how dire kidney failure may seem, having lots of good days and bad days, some peaks and a lot of valleys, whether you're adult, child, or a caretaker of the patient, it always helped me, like you, to keep my head to the sky. I put this saying on repeat in my head: "nothing grows without a little rain." My husband and I are both sending lots of positive energy, thoughts, and prayers to you and your beautiful family.
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